Treatment Guidelines: Infants / New patients
Guidelines
New Patient Guideline
Guidelines for initial treatment for an infant with newly diagnosed PKU.
Infant (0-6 months) Treatment Guideline
Treatment guidelines for infants younger than 6 months of age, who have not started eating solid foods.
Infant (6-12 months) Treatment Guideline
Treatment guidelines for infants between 6 and 12 months of age, who are starting solid foods.
Monitoring Guidelines for Mild Phenylketonuria
Treatment and monitoring guidelines for infants and children with mild phenylketonuria, ages 0-5 years.
Resources
Checklist for Families New to PKU Clinic
An information sheet/checklist to guide the initial clinic visits of a family with a newly diagnosed infant
PKU Pal
A notebook developed by the Cristine M.Trahms Program for Phenylketonuria to help families in the management of PKU
A Babysitter's Guide to PKU
Guidelines and helpful hints for babysitting a child with PKU
Finger Foods Are Fun
Guidelines for assisting in the development of self-feeding skills and familiarization with some of the mainstays of the PKU diet
Look-Alike Foods: A solution or a Pandora's box?
Questions to consider when deciding on an appropriate food strategy for your child
Monitoring Blood Phenylalanine Levels at Home
A guide for collecting Guthrie filter paper blood samples at home
New Parents' Guide to PKU
A booklet to help familiarize new parents with PKU and its treatment
PKU Self-Management Timeline
A guideline of suggested tasks for children to adopt as they progress from infancy to adulthood
Case Studies
[content currently under development]