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General Resources
 This section includes resources that address the issues of health transition and clinical care broadly.
National
Other States
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Resources for teens
- Got Transition
www.gottransition.org
National Health Care Transition Center supported by a cooperative agreement between the US Maternal and Child Bureau/HRSA and the Center for Medical Home Improvement (CMHI) at Crotched Mountain Foundation. Through partnerships among youth, families, health professionals, and policy makers, Got Transition will focus on the implementation and dissemination of health care transition best practices in primary care medical homes and specialty settings for youth and young adults. Read about the new website and why it is being developed: www.gottransition.org/site_two/Why_this__Why_now_.html.
- American Academy of Pediatrics Clinical Report – Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home
Statement from the American Academy of Pediatrics, American Academy of Family Physicians, and American College of Physicians. A new clinical report provides detailed guidance to pediatricians, family physicians, and internists to support all adolescents, including those with special health care needs, as they transition to an adult model of health care. The clinical report, “Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home,” from the American Academy of Pediatrics (AAP), American Academy of Family Physicians (AAFP) and American College of Physicians (ACP), is published in the July 2011 issue of Pediatrics (published online June 27). |
Pediatrics 2011;128:182–200.
Abstract:
http://pediatrics.aappublications.org/content/early/2011/06/23/peds.2011-0969.abstract
Download the full PDF: 
http://pediatrics.aappublications.org/content/early/2011/06/23/peds.2011-0969.full.pdf
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- Patients with Disabilities and Complex Communication Needs
This article describes the varied communication profiles a practitioner is likely to encounter in patients with disabilities and the various types of augmentative and alternative forms of communication that might be used in such circumstances. |
Australian Family Physician Vol. 33, No. 8, August 2004.
Teresa Iacono and Hilary Johnson
Download the PDF:
www.racgp.org.au/afp/200408/20040803iacono.pdf
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- Transitions in the Lives of Young People with Complex Healthcare Needs
The disabled child population now incorporates a group of children and young people with complex healthcare needs, many of whom are supported by medical devices and technologies. Little is known about their experiences and perspectives, particularly in relation to transitions. This qualitative study interviewed twenty-eight young people aged between 8 and 19 years old.
Results: Young people with complex healthcare needs experience multiple and often concurrent transitions in their lives. As well as moving from childhood to adulthood, they experience different organizational and illness transitions. This paper focuses on their experiences of moving from children to adult services and moving from parental care to self-care.
Conclusions: Transition is often too focused on service transition and transfer rather than conceptualizing it holistically as part of the process of moving to adulthood and independence. Young people with complex healthcare needs may have support needs that are unfamiliar for adult services at present. Multi-agency personalized planning that involves parents and young people is essential to ensure continuity of support and integration with other life transitions. |
Child Care Health Dev. 2008 Sep;34(5):567-75.
S. Kirk
Abstract and link to full article: www.ncbi.nlm.nih.gov/pubmed/18796049
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- Transition Medicine: A Review of Current Theory and Practice
Abstract: Every year more than 500,000 children with special health care needs (CSHCN), patients who need more consistent medical care or face significant consequences and complications, transition to adult-oriented providers. Yet these patients may encounter even greater difficulty in transitions of care than healthy adolescents and young adults, whether it is finding a provider who is comfortable managing their condition, re-establishing trust with a new provider, having providers address their unique psychosocial needs, or maintaining sufficient insurance coverage. Several models have been described with the goal of improving the transition process for patients, families, and providers. However, little evidence exists as to the actual impact of these programs on patient outcomes. This review highlights current understanding and expectations of transition for young adults with special health care needs, describes the state of transition medicine in South Carolina, and outlines areas for research and improvement on the local, regional, and national level. |
Southern Medical Journal • Volume 103, Number 4, April 2010.
Sarah H. Mennito and Jennifer K. Clark
Link to full article: www.ncbi.nlm.nih.gov/pubmed/20224504
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- Developmental and Behavioral Disorders Grown Up
“This article lays out a conceptual frame about what transition means and how it affects the lives of young people with disabilities and behavioral disorders, their families, and their communities. It includes a number of generic concepts, practical considerations, and suggestions for practitioners and researchers interested in transition.” |
Journal of Developmental & Behavioral Pediatrics, Volume 29(6), December 2008,
pp 524-533. Judith S. Palfrey, Susan M Foley, Niraj Sharma
Abstract and link to full article: www.ncbi.nlm.nih.gov/pubmed/19077849
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- Primary Care of Adults with Developmental Disabilities: Canadian Consensus Guidelines
This article is an update to the 2006 Canadian guidelines for primary care of adults with developmental disabilities, formulated within an ethical framework that pays attention to issues such as informed consent and the assessment of health benefits in relation to risks of harm. These guidelines synthesize general, physical, behavioral, and mental health issues of adults with DD that primary care providers should be aware of, and they present recommendations for screening and management based on current knowledge that practitioners can apply. (full text available at no cost) |
Canadian Family Physician, May 2011, Volume 57, Number 5, 541-553.
Abstract and link to full article: www.ncbi.nlm.nih.gov/pubmed/21571716
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- Health Web Sites for Teens
Abstract and Introduction: According to the results of a Pew Internet & American Life Project (Purcell & Lenhart, 2010), 93% of teens (12 to 17 years of age) go online. Thirty-one percent of teens reported going online to search for information about general health, dieting, and fitness, with 17% reporting that they search for sensitive health information. The most enthusiastic searchers for online health information are female, with 38% of teens who go online to search for health information being between the ages of 14 to 17 years. While the Internet provides free access to a wealth of health-related resources, it also presents challenges to teens who may not know how to access or evaluate the quality of online health information. This article will provide a brief overview of key issues for parents and health care professionals to consider when guiding teens who search online for health information and educational resources. Article includes links to Web sites focused on teen health. |
J Pediatr Health Care. 2011 Mar-Apr;25(2):e1-5.
Jennifer P. D'Auria
Link to full article: www.ncbi.nlm.nih.gov/pubmed/21320676
NOTE: This article can also be accessed through MEDSCAPE by licensed health care professionals who register as users on the website.
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